Because seizures can happen without warning, it’s best to have a plan in place so you’ll know what to do when an episode occurs.
What to Do When Your Child Has a Seizure
• Stay calm.
• Do not try to stop the movements.
• Clear the area around your child of any hard, sharp or hot objects. If walking around, gently lead your child away from hard, sharp or hot objects, doors or stairways.
• If your child is lying down, pillows or blankets may be used to pad items that cannot be removed. An item that is flat and soft should be put beneath the head.
• Do not try to put anything between your child’s teeth or in your child’s mouth (so they do not aspirate their secretions into their lungs).
• For a tonic‐clonic seizure, gently roll your child onto one side until he/she is fully awake.
• Stay with your child until the seizure is over and your child can answer questions such as “Who am I?” or “Where are you?”
• Allow your child to rest if he or she is sleepy. Check on your child frequently.
Your child’s doctor may recommend a rectal form of medication called Diastat Acudial. This can be used at home to stop a seizure that lasts longer than five minutes or three seizures in one hour. If you do not have this prescription, ask your doctor if this would be helpful for your child.
Go to the emergency department or call 911 if:
• The seizure lasts longer than 5 minutes and there is no Diastat available.
• The seizure is followed by more seizures and your child does not wake up in between seizures.
• Your child has trouble breathing, seems hurt or is in pain.
• Your child’s color appears bluish or gray during or after the seizure.
• Your child has diabetes or may be pregnant.
• The seizure occurred in the water.
Please bring your child’s medication bottle and have the name of your child’s neurologist and clinic phone available for the emergency providers.
Call your child’s neurologist or doctor if:
• Your child’s seizures have increased in frequency.
• Your child has experienced a new type of seizure.
• Your child has side effects from the AEDs.
• Your child developed a rash after starting new AEDs.
Use the following list of questions to help record the seizure and share this information with your child’s neurologist.
1. How did your child act before and after the seizure?
2. Were there any warning signs that the seizure was starting?
3. What happened during the seizure?
4. Was one side or part of the body more affected?
5. Did it start on one side of the body and affect the other side?
6. Did the head or eyes turn to one side during the seizure?
7. How long did the seizure last?
8. How long did it take your child to return to normal?
9. Was one side of the body weaker after the seizure?
10. Did your child pee or poop during the seizure?
Illness in your child may cause a breakthrough seizure. A breakthrough seizure is a seizure that occurs in a child whose seizures had previously been well‐controlled. If your child is sick, please share this information with your neurologist because it may influence his or her decision to adjust your child’s AEDs.