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Connecting the Dots...Children and Adolescents with Medical Complexity

Presented by CHOC Children’s

In Collaboration with Dysautonomia International

FOR THE MEDICAL PROFESSIONAL
Date: Saturday, Dec. 3, 2016
Cost: Physicians – $95.00
Nursing/Fellow/Other – $75.00
Resident – $25

FOR THE PATIENT AND/OR FAMILY MEMBER
Date: Saturday, Dec. 3 and Sunday, Dec. 4, 2016
Cost: Patient/Family – $25

Location: CHOC Children’s
1201 W. La Veta Avenue, Orange, CA  92868
Clinic West Building, 2nd Floor
Harold Wade Education Center

Click here for directions

Video

Please join in as CHOC Geneticist, Neda Zadeh, MD, teen patient and advocate, Shira Strongin, (aka Sick Chick) and Barbara Granoff, MSW, parent/patient advocate discuss the impetus for the upcoming conference on Dec. 3 and 4 about the medically complex patient population.  Guest Speakers at this conference include renowned national experts on Connective Tissue Disorders, Dysatuonomia and Postural Orthostatic Tachycardia Syndrome, Mast Cell Activation and Complex Pain Conditions.  These national experts will help medical professionals and patients connect the dots on these complex medical conditions at this cutting edge conference.

About

This conference will present an inter-professional, integrated approach to the assessment and management of pediatric patients with complex medical needs.  In the US, approximately 1 in 25 children are considered “medically complex,” challenged with multiple, chronic, severe health conditions and requiring substantial medical and psychosocial support. The number of children with complex medical needs is expected to double in the next decade. This symposium will focus on these commonly overlooked, under-diagnosed, multifaceted medical conditions that can have a multi-system impact on patients, such as connective tissue disorders (including Ehlers-Danlos syndrome (EDS), chronic pain syndromes, postural orthostatic tachycardia syndrome (POTS), dysautonomia, and mast cell activation disorder.  This conference will educate medical professionals who encounter a child or young adult with complex multisystemic medical findings.  Earlier diagnosis and treatment of this patient population is essential in providing appropriate medical management, improvement of quality of life, and providing education and support to patients and their families.

At the conclusion of this event, participants will be able to…

  • Diagnose the symptoms for some of the more common connective tissue disorders including Ehlers-Danlos syndrome (EDS), hypermobility type, and refer accordingly to appropriate sub-specialty.
  • Diagnose the symptoms for postural orthostatic tachycardia syndrome (POTS) and how to assess for this in the outpatient medical setting and refer to cardiology.
  • Recognize features of mast cell activation disorder, and understand how this relates to certain forms of Ehlers-Danlos syndrome and refer accordingly.
  • Describe current therapy and treatment options for chronic pain and connective tissue conditions in children and adolescents.
  • Consider the signs and symptoms of possible underlying connective tissue disorders, and resources and referrals available.
  • Follow suggested treatment plans for chronic pain in children and adolescents.

 

Refunds/Cancellations

A written notice of cancellation must be received by November 18, 2016.

All admin fees and credit card transaction fees are NOT refundable.

A $50 cancellation fee will be assessed. After November 18, 2016, cancellation requests cannot be honored.

Substitutions are allowed.

We understand from time to time, emergencies do occur. However, due to our contracted food & beverage minimums and hotel room block, we will be unable to refund any registration fees past the November 18, 2016 deadline.

Questions? Please call 800.329.2900 or email CHOCCME@choc.org

Map and Directions

CHOC Children’s
1201 W. La Veta Avenue, Orange, CA  92868
Clinic West Building, 2nd Floor
Harold Wade Education Center

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Long Live Childhood

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