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RESOURCES
GENERAL
American Academy of Neurology
651-695-1940
www.aan.com (provides valuable resources for medical specialists)
Charlie Foundation
1223 Wilshire Blvd.
Box 815
Santa Monica, CA 90403
800-367-5386 (Provides information and support for those on the
ketogenic diet)
Epilepsy.com
www.epilepsy.com (Information, videos, and on-line nursing and
medical support to answer questions)
Epilepsy Foundation
Los Angeles, Orange, San Bernardino, and Ventura Counties
800-564-0445
SOS@epilepsy-socalif.org
www.epilepsy-socalif.org (Excellent resource on all kinds of information
regarding seizures, includes teen programs and support group information)
Epilepsy
Foundation of America
800- EFA-1000
Information
800-EFA-4050
Library Database
301-459-3700
www.efa.org
National Institute of Neurological Disorders and Stroke
800-352-9424
301-496-5751
www.ninds.nih.gov (Provides information on epilepsy research)
OCTA Access
714-560-5956 (If eligibility requirements are meet the OCTA will
provide door to door transportation to medical appointments)
Vagus Nerve Stimulator Therapy Hotline
888-867-7846 (General information available)
888-508-8082 (Teleconference hosting a Case Manager and VNS Therapy
patient on Monday’s in Spanish at 1:00PM, Monday-Thursday
available at 8:00AM, 11:00AM, and 5:00PM in English. Call 888-508-8082
prior to calling in to the teleconference to request the “Guide
for Patient Teleconferences”.
RELATED NEUROLOGICAL DISORDERS
The ARC (Formerly Association for Citizen with Retardation)
310-565-3842
www.thearc.org
Autism Society of America
301-657-0881
www.autism-society.org
United Cerebral Palsy
800-872-5827
www.ucpa.org
Tuberous Sclerosis Alliance
800-225-6872
www.tsalliance.org
SUPPORT GROUPS
Orange – COPE Group (with Epilepsy 101)
Alex Center, 165 N. Myrtle Avenue, Tustin, CA
Meetings are held the fourth Friday of every month, from 6:00PM
Facilitator: Staff of Epilepsy Foundation
Orange – Esperanza Spanish Group
CHOC West Building B, 455 South Main Street, Conference Room A,
Orange, CA
Meetings are held the first Friday of every month, from 7:00 to
8:30PM
Facilitators: Guadalupe Cabrera and Albert Sato (Volunteers)
Teen Programs are offered year-round though the Epilepsy Foundation.
Call 800-564-0445 or email teens@epilepsy-socalif.org to get more
information.
Family Weekend Camp is held annually for families with children
with epilepsy. This is a great opportunity for families to learn
more about epilepsy, socialize, and enjoy recreational activities.
For more information call camp coordinator, Guadalupe Corral-Leyva,
at 800-565-0445.
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