CHOC Children's

Support Groups

This page contains links to other World Wide Web sites with information about support groups for parents affected by a birth defect. We hope you find these sites helpful, but please remember we do not control or endorse the information presented on these Web sites, nor do these sites endorse the information contained here.

Alliance of Genetic Support Groups

National Down Syndrome Congress

7000 Peachtree-Dunwoody Road, N.E. Building 5, Suite 100
Atlanta, GA 30328
1-800-232-NDSC or (770) 604-9500

National Down Syndrome Society

666 Broadway
New York, NY 10012
1-800-221-4602 or (212) 460-9330

National Organization for Rare Disorders

P.O. Box 8923
New Fairfield, Connecticut 06812

Rare Genetic Diseases in Children Homepage

S.O.F.T. (Support Organization for Trisomy 18, 13, and Related Disorders)

The Compassionate Friends

P.O. Box 1347
Oak Brook, Illinois 60521


It is important to remember the health information found on this website is for reference only not intended to replace the advice and guidance of your healthcare provider. Always seek the advice of your physician with any questions you may have regarding a medical condition. If you think you may have a medical emergency, call your physician or 911 immediately.

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